It's Beginning to Look A Lot Like Fun*Run Time

It's ALREADY that time of year again: The ADAPT Fun*Run for Disability Rights is April 22nd 2012. Maryland's fundraising goal is $8,000 this year. Yes, that's right, $8,000

Donate $1! Donate $10! Donate $100! Donate $1,000! JUST DONATE so we can FREE OUR PEOPLE! I thank you very much for your support!

Thursday, January 6, 2011

FDA ECT Meeting (I almost missed this) & January White House Disability Call

From MindFreedom International:
The US Food & Drug Administration holds a meeting about electroshock device

The US FDA announced that on January 27 and 28, 2011, a US Food & Drug Administration committee will "discuss and make recommendations regarding the possible reclassification of devices indicated for use in electroconvulsive therapy."

what Forum
when Jan 27, 2011 08:00 AM to Jan 28, 2011 06:00 PM
where Gaithersburg, MD
contact name James Engles, FDA
contact phone 301-443-0572 code 3014512513
attendees All are welcome.

US Federal Committee To Have Meeting About Electroshock Devices
Location of FDA meeting:

Hilton Washington DC North/Gaithersburg, Ballroom, 620 Perry Pkwy, Gaithersburg, MD.

More info from FDA web site:

The FDA has appointed an advisory committee to assist it to determine if electroconvulsive therapy (also known as electroshock) devices will be moved from Class III to Class II, or as many have proposed, to require the manufacturers to submit a "Pre-Market Application" which they should have been required to do 35 years ago.

If the Committee agrees to downgrade the risk of ECT to Class II, it will be more readily available, and the manufacturers may never have be required to prove either that it is safe, nor that it is effective.

ECT survivors may briefly speak to the committee in this public meeting to provide their story or perspective on the harms caused to them by ECT.

Communication of long term harms is especially important, as the manufacturuers and ECT advocates are minimizing ECT long term ill effects - such as long term memory loss, as well as long term effect of reducing ability to learn and remember new information.

The FDA states that persons wishing to speak at this important meeting may contact James Engles at While a deadline of 14 January is listed to ask to speak, the sooner the better.

There will certainly be psychistrists and manufacturers representatives and others claiming ECT is a life saving treatment. The Committee needs to hear from people who know the true risks of electroshock.
From the Whitehouse:
In order to help keep you more informed, we are hosting monthly calls to update you on various disability issues as well as to introduce you to persons who work on disability issues in the federal government.

This call is off the record and not for press purposes.

We strongly urge and ask that you distribute this email broadly to your networks and list serves so that anyone who wants to participate can do so.

Our next call will be Monday, January 10 at 3:00 PM Eastern.

The conference call information is below.
Dial in: (800) 230-1093
Title: Disability Call (use instead of code)
Date of Call: 01/10/2011
Start Time: 3:00 PM Eastern

For live captioning, at time of call, log onto:

Again, please distribute widely.


susan said...

Thanks for posting this. ECT destroyed my brain and put me on disability. It's good to get the word out, and Mind Freedom does such great work.

Cheryl said...

Are you planning to take a trip down to testify? Is that a possibility for you right now? Submit written testimony?

susan said...

I will submit written testimony. Guess what I will be working on for the next few days!!!!!

Too weak to get to DC, I cannot even walk to the mailbox! Ugh!

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